Support

  • White T-shirt with a blue and yellow disabled accessibility symbol. Below the symbol, it says "KISS MY ALS" in white text, and underneath that, in smaller black letters, it says "TEAM SKARNULIS."

    Support

    Support Team Skarnulis in raising money for ALS research. Visit our page on Bonfire to learn more about our goals.

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    Socials

    Follow Steve’s journey on social media.

  • A small desk calendar displaying June 2024, with the days of the week labeled from Monday to Sunday, and the dates arranged in a grid.

    Events

    Help support in person at future events.

A blue and yellow sign featuring a wheelchair accessibility icon and the text 'KISS MY ALS'}

UPCOMING EVENTS

UPCOMING EVENTS

February 15

Walk To Defeat ALS, The ALS Association

Austin, TX

The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.

That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again. 

The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.

But, we can’t stop now. The key to a cure begins with you. 

Please consider joining me or making a donation. With your help, we will be able to make a difference in the lives of people affected by this disease. 

Register

Social Media

Follow along with Steve on social media. Steve posts life stories, tips for other ALS survivor’s, and general life updates.

ALS Resources

Les Turner ALS Foundation

https://lesturnerals.org/